It is four years since the Language of Autism project started in County Durham.
This co-produced project served to highlight the need to use the correct language to describe autism. Fifteen years ago NICE (National Institute for Clinical Excellence) identified that autistic people did not like being referred to as disordered, and urged people to avoid ASD or Autistic Spectrum Disorder as much as possible. However, time and again the term Autistic Spectrum Disorder/ASD is commonly used.
A group of young neurodiverse individuals called the eXtreme group (Investing in Children) co-produced a survey asking about people's preferred terms when talking about autism and it was clear that autistic people significantly preferred the term autism and significantly disliked the term ASD and Autistic Spectrum Disorder.
The young people wanted to let other people know about the survey and they were lucky enough to secured funding to co-produce a video of the survey results.
The eXtreme group would love for you to watch their short 3 minute video: https://youtu.be/F03Dwp5YWw8
For more information on the survey and why it was carried out please visit: https://youtu.be/ZzdrFubsdc8?si=MaU_43rSRPWVd0Tx for a short (18min) presentation.
And finally, some beautiful words from Dom about why this project was important to him: https://youtu.be/VbiDxhKEq0E
Please share widely and do consider the words that you use to describe autism. |